Moving Forward
We left Substack and made the move over to Ghost. You don't have to do anything and ideally you won’t notice a change.
We have some new people in the community and I'm so glad you're here. A quick catch up, 4 years ago after becoming severely ill with COVID I developed Long COVID and it's been a very challenging journey. My husband and kids had a more mild acute infection but also developed Long COVID. My kids and I are still disabled with it.
For those of you who have followed along with updates on our GoFundMe page you know a bit about what I have experienced the past year. My abilities have declined greatly and I am not unable to read or write. At this point anything written “by me” is done with the assistance of Kendall and my contributions completely wear me out. For the past 4 years and the foreseeable future, every second of my life and what I do is dictated and determined by my symptoms and this illness. I cannot commit to or make plans for anything. Everything is held loosely and I live moment to moment. If a window opens up where I can plant a few seeds, hang out with my kids, post a thought to Instagram, text a friend, write a poem, or create a guided meditation then I seize the moment and do one of those things for the few minutes I can. I never know when I will get a window, how long I’ll have it or when it will make another appearance. They are precious, sporadic, few and far between. It is the ultimate practice in being present.
Because I cannot consistently commit to anything I’ve decided to pause all paid subscriptions (there may be some hiccups as we finalize this) and are offering refunds to anyone if it’s wanted. I’m so grateful to each of you for your support over the years. If a window opens up where I can share a few thoughts here or on Instagram I will. Through that medium I’m sharing what I can when I can about our experience navigating Long COVID as a family, living with chronic illness and disabilities and attempting to create a life in the midst of so much loss and suffering. If I can create a guided breathwork or meditation I will. I still feel like me on the inside. I still have the same passions and curiosities and desires. More so even. My love for nature, running, skiing, traveling, reading, writing, baking, gardening and connecting are as vibrant in my heart as ever. However, my ability to do any of these things has completely gone. What I have now is a lot of time to practice being in the moment, whatever that moment looks like, and I’m learning a lot. My therapist said I wanted to be a long distance trail runner but for now at least I’m living the life of a person who has committed themselves to a spiritual path–a monk that sits in stillness, quiet and solitude pondering many of life's deepest challenges.
If knowing all this you would still like to support my offerings you can do so via Patreon.
Links to follow along on our journey:
This newsletter of course.
GoFundMe where we post health updates and are currently raising funds to buy The Rig.
Instagram: @makeonechange
YouTube: Meditate with Mollie
